Living with Lupus

hospitalLupus is an unpredictable invisible illness. Living with this invisible illness can be very frustrating but rest assured it can be done. Everyday will be different. Just because you have Lupus does not mean you cannot live a normal life. There are many ways to cope with living with this chronic illness. Deciding to have a positive attitude should be your first step and main goal when coping with any illness. Living with Lupus can be very stressful to those who may not be able to handle sudden change. It can be very aggressive at times and very mild at other times. Do not sit around feeling sorry for yourself. I repeat “Do not sit around feeling sorry for yourself“. That is only going to cause your Lupus to flare and become worse. Any emotional stress will be very detrimental to your health and over all well being while dealing with this illness. Stress is your worst enemy! Try your best to spend your time engaging in whatever bring you joy. Unfortunately there is no cure for Lupus. That does not mean it is the end for you. Having hope and believing that you can make it through your daily life will place you one step closer to beating Lupus mentally. Get moving, workout at home. Any movement will help your joints and muscles it will also help your immune system. Get active! Join a gym it will benefit your body in many ways, take swimming lessons, aqua therapy is great in aiding with muscle and joint pain. Try to get active out doors ride a bike or even go for a run/jog.

Working with your doctor is substantial when it comes to living with Lupus. Understand that keeping track of your symptoms, pain levels, medication regimens, side effects and flares will help you understand what can and cannot be done while living with Lupus. Keeping a strict medication routine can help minimize Lupus flares. Lupus flares can be anything that prevents you from accomplishing your daily activities. No matter what kind of flare, keep track and you will have a better understanding of what your body can and cannot handle.

   Lupus flare examples:
•Brushing your teeth due to pain in the joints of your fingers
•Deformed fingers due to arthritis
•Not being able to walk up a flight of stairs
•Skin lesions
•Mouth sores
•The famous butterfly rash across the bridge of your nose.

Joining a support group in your community can also be very beneficial to you. Knowing that there are others who are battling a similar battle to yours can really help, when it comes to emotional support.  If you are home bound due to this illness you can join an online support community group. Take time to research what Lupus is and ways to mange while living with Lupus, so you will have an idea of what you now have to deal with for the rest of your life. The better educated you are on your illness, the better you will be able to handle what you have to deal with daily. Become proactive when it comes to what you are facing. When finding out that you have a chronic illness you may feel many emotions but be brave and know this is not the end of your life, it is the beginning of your new life moving forward. Life may never be the same because of Lupus but it does not have to be dreadful.

Categories: About Lupus

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